My Son had Malignant Melanoma

I wanted to write a blog to raise awareness on my sons condition, he is just 16 and had a mole that went horribly wrong, when I say that, I mean he picked it!!!!

By the time he had it removed it had turned into metastatic malignant melanoma (it means it spread)  he had 3 lymph nodes taken out of  his groins, as the melanoma was at the top of his thigh.  By now the cancer had spread into his internal organ his stomach thankfully it has stopped there. Ryan is the first 16 year old in the world to undergo drug trials at the Royal Marsden Hospital Sutton. 

Ryan is on a drug called Vemurafenib, its a drug that attacks the mutation B Raff.  Ryan ‘s cancer is not curable, but treatable and manageable  with the drugs.  We have started up a web site to raise funds for the next drug Ryan may need to use www.ryanjustbeatit.co.uk please have a look. 

At present we have raised over £10.000 and still growing, please do take time and read Ryan’s story on the web site and if you do have any question i am more than happy to reply.  You have to excuse me as this is really my first blog, but I can feel I am going to enjoy talking to you all 

maria 

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4 Comments

  1. Avatar
    Amanda March 21, 2013

    How awful for Ryan and you all as a family, Maria. Will Ryan have to take drugs indefinitely and are they having any side effects? Can I ask if the mole was just a small brown type that many people get and looks ‘normal?’

  2. Avatar
    Fedup Smith March 21, 2013

    Good luck with the fund raising Maria. If I win the lottory i will definitelt chip in

  3. Avatar
    maria thurston March 29, 2013

    Ryan had a real eventful week Teenager Cancer Trust help a week at the Royal Albert Hall, and John from the Royal Marsden Teenager Caner Unit organised for Ryan and I to go along to a music workshop at the Royal Albert Hall. It was a real pleasure to go and we had the most fantastic day, we had a tour of the Albert hall its beautiful and saw where the Royals go!! and evening meal then we saw the show it was so funny Russell Brand, Noel Fielding it was hilarious. We was invited backstage to meet Russell Brand, Noel Fielding, Richard Bacon, David Walliamson, and Noel Gallagher what a fantastic end to a perfect day. We have some great photos however I can not upload on here but go to our facebook page and invite us as a friend and you can see them they are fantastic. Facebook ryanjustbeatit and it has our logo on there.

  4. Avatar
    maria thurston July 03, 2013

    just wanted to share this with you all my son died on the 26th april 2013 at the age of 16 he fought so hard to save his life, however it want to be and he is now at peace. He had a beautiful funeral where over 400 people attended and a celebration of his life. We continue to raise money for the foundation and hope to get the message out there please have a look at our web site http://www.ryanjustbeatit.co.uk and you can read all about it. If you think you could help please get in touch. via twitter or facebook on here many thank for taking time to read this post

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